WHeavy heart, I clicked on my last morning 23Andme account, I confirm that I want to delete my data. The Genetic Test Company presented for bankruptcy in late last month, and the Prosecutor General of California, because of the company’s bankruptcy works, as soon as the company’s bankruptcy works, they advised the company to be taken by less scuposis.
I was one of the earliest customers of the company and used their services not only from my own, but not all my wide family. I even got a bunch of my kids babies.
Many of the company told me that I already knew and I had little results: I love Cilantro’s taste and my wife is not. I am a morning man and he is the night owl. Mosquitoes prefer blood to blood. But that’s what I didn’t know, he said: a total of 44% of the two-year-old child “Related” (eg 50% below average) – many things explained! My father’s mother can be a native American ancestor, keeps the family alive. And the most shocking, half-in-law is Ashkenazi Jewish; He thinks that his father turned out to be wrong.
However, the most important use of the data goes beyond discovering the long-lost family members or to confirm the features we have already recognized. I was able to get TS and GS, which formed a million or more places in CS, AS, AS, GNS, GNS, GNS, GNS and GS, before deleting my account. After that, I can download this text file to an independent server to calculate polygenic indices for numerous signs: coronary artery disease, dementia or ADHD to my weight or everything from my musical ability to music.
I think these scores are like FICO credit scores of human biology. They predict how your child or even your embryo will tariffs in the world (very noisy). Some, like the index of height, do a good job. Others – say that the extraating index – not better than a number of coin flips. Education, the most read index in my study, emerged.
This information is useful for being elegant by scientists every year and more is obtained. These scores – or the information they are based – not only the type of information you want to fall into the hands of corporate actors with the bottom lines. 23Andme’s opening offers a window of opportunity to think about our policy in these new vehicles.
2008 Genetic Information Prohibits the use of genetic information by health insurance companies (Gina) health insurance companies and employers. Human genetic mainly retreated when “Ogod” paradigm, a gene, a disease. You would have taken or did not get Huntington’s disease. However, the next year, the first genome was calculated in a large policinal index – for schizophrenia – and how we thought about the genetic prediction. Although I don’t have a rare mutation now, my data would be useful for profit companies that can predict a lot about me.
Moreover, law, life insurance companies, long-term care insurance or nothing about car insurance are said. Does not apply to schools that can potentially use data in admission or placement decisions. And the law is the mother, sperm or ova banks and productivity clinics how to build polygen indices.
This bold new world may seem simple to solve the solution for this brave new world (and pressing 23Andme in the collapse light): Change the genetic information discrimination covering all these other use scenarios. However, this option creates its own problems as attractive as attractive. Simply, 23Andme does not mean the end of the consumer genetic testing period because its business model does not work. It is increasingly pouring a cup to get results from an American ancestor or family or other service. When you understand how to load raw data and calculate how their policigor scores can move on this information.
When I use my own public opinion research to judge other people and other people’s genetic information, they show that they use their genetic information to adjust their genetic information for the risk index. However, they want themselves to use this information to improve their lives.
It becomes complicated. Seeing that people found in a study since 2009, they said that people who see that they are a genetically inclined to Alzheimer’s prone to such insurance, he said.
Looks rational, isn’t it? This – but when people are likely to use people’s insurance, the whole system goes side by side when people are in a hurry to buy it. Rewards are spike, healthy people guarantee and what it is, it only takes a risk – and more expensive – until the market is mainly eaten. Economists have a name for this. The death is called spiral.
So what do we do? We cannot complete people from entering their genetic data. He stays out of the glass. It may seem fairly or fair to insurers, but it does not solve the problem. A better approach – especially when it comes to long-term care – a page from car insurance is to borrow: requires everyone to participate. However, we will have to ban a premium regulation on the basis of genetic risk – that is, Gina extended.
The bigger picture here is that genetic data is only part of daily life – you are part of a society, you can say. Symptoms should also live in a world where people know the risks of people before visible, we need insurance systems and regulations ready for this reality. Because if we wait, there can be no market in reform. It can simply not be given 23ANDME for bankruptcy.
We cannot claim in 2003 before completing the human genome project. As many people want to enjoy the genetic information of the differences, we can use the death of 23Andme to be collected and maintaining this information. For example, we can want to send a home test that the road we make for the house test can be obtained for free everyone? Create a public, protected database that cannot be sold to private equity and is accessible only for people themselves and the people they define (eg doctors or perhaps researchers)?
I understand that the new investments in science will be difficult to come soon. Trust to the government is always low. But at least we can start discussing how we want to walk this new genetic prediction world.
